Living well
with dementia
What it is
A dementia diagnosis can bring uncertainty, but it does not mean life stops.
The Good Life With Dementia course brings people together to learn more about living well after diagnosis, share experiences and explore practical ways to stay connected, independent and involved in the things that matter to them.
For participants in Withernsea, the course became more than a place to learn. It offered a supportive space to talk openly, challenge misconceptions and build connections with people who understood what they were going through.
Participants were clear that a dementia diagnosis should not define who someone is or what their future can look like.
“No-one should feel bad about a diagnosis. We’ve all still got brains and thoughts and feelings.”
Across the sessions, the group shared experiences, learned from one another and explored practical ways to continue living well. Just as importantly, they found a space where they could talk openly about their concerns, hopes and experiences with people who understood.
Why it matters
Life does not stop after a diagnosis
A key theme throughout the course was challenging misconceptions about dementia.
Participants reflected on how a diagnosis can change how other people view them, despite feeling like the same person they were before.
“We are still the same person the day after a diagnosis as the day before, though others change towards us.”
The group wanted others to know that a diagnosis is not the end of life as they know it.
“We are proof there is life after a diagnosis as we helped put this course together.”
The difference it’s making
Supporting each other through shared experiences
The course gave participants an opportunity to talk honestly about what dementia means to them.
Many described frustrations with memory, communication and the ways others sometimes respond to their diagnosis. However, they also spoke about the value of staying connected with their communities, maintaining hobbies and supporting one another through shared experiences.
One participant reflected:
“After making the hardest step in accepting the diagnosis, it’s good to focus on targets in the here and now.”
Others spoke about continuing activities they enjoy, maintaining friendships and finding practical ways to remain independent. Writing things down, establishing routines and staying active were all identified as important strategies for living well with dementia.
The importance of connection
For many participants, one of the most valuable aspects of the course was meeting other people who understood their experiences.
“It’s nice talking about it together.”
“It feels really comfortable here.”
“I feel everyone in this room are my friends now and we’ve been on this journey together.”
These conversations helped reduce feelings of isolation and gave participants confidence to discuss dementia openly.
Looking to the future
By the end of the course, participants reported feeling more informed, connected and optimistic about the future.
They valued having a comfortable, supportive environment where they could learn, share experiences and build lasting friendships.
“It’s encouraging to know there’s help for us. We’re not forgotten.”
Several participants expressed a desire to continue meeting after the course had ended, highlighting the strong relationships that had developed as a result of taking part.
The Good Life With Dementia course demonstrates how bringing people together can foster confidence, reduce isolation and empower individuals to live well following a dementia diagnosis.
Tips and advice
A message for families, friends and communities
The group also wanted to share advice for the people around them.
They spoke about the importance of maintaining independence, being included in decisions and being treated with dignity and respect.
“Dementia doesn’t make us stupid.”
“Sometimes I feel like a three-year-old, with others making decisions for me. We are not children.”
Participants highlighted how understanding, patience and good communication can make a significant difference to people living with dementia.